CKD.QLD Registry overview

Chronic kidney disease [CKD] is recognised as a global public health problem. Until relatively recently, the majority of information informing on CKD has been generated from renal registries reporting on patients with end-stage kidney disease [ESKD] and on renal replacement therapy [RRT]. There has been a paucity of information on pre-dialysis CKD cohorts, and many issues related to these poorly described populations are unresolved. To this end, international organizations have called for CKD surveillance systems across all countries.

In Australia, we have responded by developing Chronic Kidney Disease in Queensland [CKD.QLD]. The core platform of CKD.QLD is a Registry specifically for the pre-dialysis population in the adult public health system in Queensland, Australia. Recruitment started in May 2011, and to date the Registry has evolved as one of the largest CKD cohorts in the world with a recruitment over 9,000 patients (January 2019). The Registry has had many outcomes, including being the nidus for Australia’s first National Health and Medical Research Council CKD Centre of Research Excellence [APP1079502].
 
The Registry, with its linkage to Queensland Health datasets, is reporting, and is expected to continue generating, significant information on multiple aspects of CKD, its trajectory, management, patient outcomes and health service utilisation in both the public and private sector (see the Health Service Utilisation project). 
CKD.QLD Registry Person Counter (updated Jan 2019)

9,005

Pubications

  • Mahmod U, Healy HG, Kark A, Cameron A, Wang Z, Abeysekera R, Hoy WE. Spectrum (characteristics of patients with chronic kidney disease (CKD) with increasing age in a major metropolitan renal service. BMC Nephrology 2017;18(372) DOI: 10.1186/s12882-017-0781-5

Ethics approvals

Study currently approved until 31 December 2019
  • Queensland Health: HREC Reference Number (MNHHS): HREC/15/QRBW/294 as of June 2015
                   Previously HREC Reference Number (OHMR): HREC/10/QHC/41 - Nov 2010 to June 2015
  • University of Queensland: University of Queensland Medical Research Ethics Number: 2011000029

 

 

Project members

 Management Committee

Professor Wendy Hoy

Faculty of Medicine
The University of Queensland
Dr Helen Healy

Dr Helen Healy

Kidney Health Service
Metro North Hospital and Health Service, Queensland Health
Professor Robert Fassett

Professor Robert Fassett

School of Human Movement and Nutrition Sciences
The University of Queensland
Dr Sree Krishna Venuthurupalli

Dr Sree Krishna Venuthurupalli

Toowoomba Hospital, Darling Downs Hospital and Health Service
Queensland Health
Operational
Ms Anne Cameron

Ms Anne Cameron

Manager, CKD.QLD & NHMRC CKD.CRE
Faculty of Medicine, The University of Queensland
Dr Zaimin Wang

Dr Zaimin Wang

Faculty of Medicine
University of Queensland
Dr Jenny Zhang

Dr Jenny Zhang

Faculty of Medicine
The University of Queensland
Dr Vishal Diwan

Dr Vishal Diwan

Faculty of Medicine
The University of Queensland
Queensland Health Lead Investigators as of February 2018

Dr Helen Healy; Director, Kidney Health Service, Metro North Hospital and Health Service [HHS]

Dr Ken Tan; Logan Hospital, Metro South HHS

Dr Thin Han; Rockhampton Hospital, Central Queensland HHS

Dr George Kan; Townsville Hospital, Townsville HHS

Associate Professor Thomas Titus; Gold Coast Hospital, Gold Coast HHS

Dr Krishan Madhan; Hervey Bay & Maryborough Hospitals, Wide Bay HHS

Dr Murty Mantha; Cairns Base Hospital, Cairns and Hinterland HHS

Ms Chris Banny; Mackay Base Hospital, Mackay HHS

Dr Govindarajulu; Toowoomba Base Hospital, Darling Downs HHS

Dr Nicholas Gray; Nambour Base & Sunshine Coast University Hospital, Sunshine Coast HHS

Ms Andrea Rolfe; Kingaroy Hospital, Darling Downs HHS

Dr Dwarakanathan Ranganathan; Kidney Health Service, Metro North HHS         

Dr Clyson Mutatiri; Bundaberg Hospital, Wide Bay HHS

Dr Shahadat Hossain; Bundaberg Hospital, Wide Bay HHS

Dr Danielle Wu; Mackay Base Hospital, Mackay HHS

 

Previous Investigators and/or Site Closures

Ass Professor Nicole Isbel; Princess Alexandra Hospital; Metro South HHS. Site closed January 2018.

Ms Tracey Johnson; Inala Primary Care Ltd. Site closed; mid 2017

Dr Suzanne Williams; Inala Primary Care Ltd. Site closed; mid 2017

 Ms Robyn Bailey; Kingaroy Hospital, Darling Downs HHS. Resigned; mid 2017